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Archie Battersbee’s mother today accused an NHS hospital of seeking a “choreographed execution” of her 12-year-old son, as the family prepared for a High Court hearing today to decide whether the boy’s life support should remain.
Hollie Dance said the family has had “no support at all” from Archie’s carers, Barts Health NHS Trust, telling Sky News: “Absolutely none.” I know they present themselves to the media as caring and compassionate. It’s the opposite. It is very misleading.
Ms Dance said she was delivered a letter on Saturday night with Archie’s “choreographed performance”. “There was no meeting, she sat down and broke up gently,” she said.
It came as government lawyers stepped in last night to secure an online hearing at the High Court this morning after the United Nations asked for treatment to continue while it considered her case. It is scheduled to end at 2:00 p.m. today.
The Government letter, marked VERY URGENT and written on behalf of Health Secretary Steve Barclay, said: “In the circumstances, we wish to draw the Court’s attention to the (UN) Committee’s request for interim measures for its consideration. urgent… We request that this letter be placed immediately before the judge after hours…’
Investigation
Despite the intervention, Barts Health NHS Trust, which is responsible for Archie’s care at the Royal London Hospital, said it would go ahead with plans to remove life support today.
Archie was found unconscious at his home in Southend, Essex, on April 7. Doctors were due to finish his treatment at the Royal London Hospital by 2 p.m. m. from today.
Asked what she would like to see the government do at this stage, Ms Dance said: ‘Just to get past the decision that the justice system makes, really.
‘We shouldn’t have to go outside our justice system to do what’s right for the citizens of this country.
‘This is a 12-year-old boy… this is a boy. They say in Archie’s best interests, I don’t think for a minute that Archie’s best interests are to put his parents through what we’re going through. Our little one wouldn’t like that.
‘I think it is necessary to overlook it, and I am very grateful to the Secretary of Health for doing what he has done, very grateful. I just hope it gets overlooked in court today.
Ms Dance said the last few months have been “an emotional rollercoaster”.
She said: ‘It’s been very tiring. Stress levels are through the roof. Very heartbreaking. It’s been a very tough few months.
When she was asked how she feels about the success of today’s hearing, she said: ‘I really don’t know. I guess because of all the court appearances and things that we’ve had now and it seems…everything, apart from obviously the appeal that we won, everything seems to go in favor of the trust.
“It just left me very anxious all weekend. I have carried a lot of anxiety here in my chest. He just feels horrible.
Barts Health NHS Trust had written to the family over the weekend to let them know they intended to end treatment by 2pm. m. from today.
“The anxiety of being told that Archie’s life support will come off at 2pm tomorrow has been horrible,” said her mother, Hollie Dance.
We are already broken and not knowing what will happen next is unbearable.
‘We are relieved that the government has taken the UN intervention seriously. This was not a ‘request’ but a mandate for interim measures from the UN.’
Statement
Yesterday, Archie’s family issued a statement in response to comments in the Hospital Trust media about the withdrawal of life support, which they have described as “misleading”.
His family has been informed by letter that tomorrow the child’s life support treatment will be withdrawn in a procedure that today they describe as “cruel and incorrect”.
Mrs. Dance and Mr. Battersbee, the young man’s parents, will be told this morning how the removal process will be conducted, with the goal of “preserving Archie’s dignity,” the letter said.
He continued: “You or any family member may wish to lie in Archie’s bed with him or hold him in his arms, if that is practically possible.”
Yesterday, Ms Dance had written an urgent open letter to the Secretary of State for Health and Social Care, Stephen Barclay, urging the government to prevent life support from being withdrawn following the UN CRPD intervention.
With the support of the Christian Legal Centre, lawyers for the families filed a last-minute application with the UN CRPD after the UK Supreme Court refused to intervene in the case on Thursday.
The court order for the withdrawal of life support came into force at 2:00 p.m. yesterday, but the family’s lawyers asked for urgent guarantees that the Royal London Hospital would not start withdrawing the treatment while the parents apply to the UN CRPD.
The UK has joined the Optional Protocol to the Convention on the Rights of Persons with Disabilities, and is used by the UNRPD to request the UK government to delay the withdrawal of life support while a complaint is investigated.
Family
The family argues that stopping the treatment would breach the UK’s obligations under articles 10 and 12 of the UNCRPD and article 6 of the UNCRPD. of the child.
The UN CRPD has previously criticized the UK’s system of withdrawing life-sustaining treatment based on the “best interests” of the patient as determined by the Court.
Andrea Williams, executive director of the Christian Legal Centre, a campaign organization supporting Archie’s parents, said: “We have been with the family since the beginning three months ago after the tragedy and now we continue to pray for this beautiful boy, Archie. , and for everyone involved.
‘Life is the most precious gift we have.’
A High Court judge ruled that ending treatment is in Archie’s best interest, after reviewing the evidence.
Ms Dance and Mr Battersbee, who are separated but both live in Southend, Essex, failed to persuade the Court of Appeal judges to overturn that ruling and the High Court justices refused to intervene.
Writing to Health Secretary Stephen Barclay on Saturday, Ms Dance said: “If this happens it will be extraordinary cruelty and a flagrant violation of Archie’s rights as a disabled person.”
Archie is entitled to have decisions about his life and death
“Archie is entitled to have decisions about his life and death, made by the NHS and UK courts, reviewed by an international human rights body. Hastening his death to prevent that would be completely unacceptable.
“I am confident that he will now act immediately, as the responsible NHS member of government, to ensure that this does not happen and that our country lives up to its obligations under the international human rights treaties we have signed and ratified.”
They also asked the United Nations to intervene in a “last resort” request, issuing an interim measures order to the UK government on Friday.
The United Nations Committee on the Rights of Persons with Disabilities wrote to Archie’s parents and legal team saying that it had “requested the state party [the UK] to refrain from withdrawing life-saving medical treatment, including mechanical ventilation and artificial nutrition and hydration, of the alleged victim while the case is being examined by the committee.’
He added: ‘This request does not imply that a decision has been reached on the merits of the matter under consideration.’
The family said that stopping the treatment would breach the UK’s obligations under international human rights law.
Archie’s parents have asked hospital bosses to continue treatment until the UN has considered the case.
Judges in London heard that Ms Dance found Archie unconscious with a ligature to his head on April 7.
She thinks he might have been participating in an online challenge.
The young man has not regained consciousness.
Doctors treating Archie at the Royal London Hospital in Whitechapel, east London, believe he is brain dead and say continuing life-sustaining treatment is not in his best interest.
Alistair Chesser, chief medical officer at Barts Health NHS Trust, said on Friday that “further delay” in starting to provide “palliative care” to Archie “would not be appropriate” without a court order.
A spokesman for the Department of Health and Social Care said: “We recognize that this is an exceptionally difficult time for the family of Archie Battersbee and our thoughts are with them.”
We have received the letter and will respond in due time from him.
